This thing with my brain is dragging on and on. I’ve
described it as a holding pattern, and that indeed is exactly how it feels. I’m
just circling, unable to land this puppy and get my baggage in hand to deal
with, and unable to go anywhere else. Now, that I’m not on any medication I
feel pretty good physically, barring the come-and-go headaches. The only thing
is that the fear of possible seizure has barred me from driving, and that
little detail has changed my life.
I am blessed by people who would so love to help me, but
I am stubbornly holding onto my non-existent independence that I’m afraid I
will alienate them before I really need their help. I mean if I felt worse, or
was recovering from surgery now, I wonder if I would be so blatant in my
rejection of assistance. Honestly, I cringe that I appear to be so helpless
when I feel so okay. If it weren’t for the outside possibility that I might have
a seizure, I would just carry on with my life as it was before this all
happened…sort of...
My mom visited us for a week over Thanksgiving, and I
tried that business of carrying on as if in normal condition, with the non-chalant ability
to run errands because she was driving. Har.
Three hours a day of grocery shopping and errand running over the course
of three days sent me to bed for two days. I have been taking three hour naps
and going to bed early for nearly a week now since she departed. I’m not
complaining. I have the ability to do this because of everyone’s support, but
it is astounding to me.
I read in Julia Cameron’s (The Artist’s Way) Facebook
feed, “Tell
yourself you need to relax instead of create. Tell yourself you’ll write later.
#how2avoidmakingart” and if I hadn’t been sitting down, I think I would
have fallen over. I actually wrote a comment, “Wait…what?” That’s when I realized that I’m a driven
person. “Relax” is the comment I’ve received the most on my posts about this
affair I’m having with a benign meningioma. And, I have to be frank; the front
of “I’m okay” is beginning to break down because I do not know how to relax. I
don’t know how to escape without running away. That’s when I realized that
writing projects often serve to keep me on edge, running mentally away, rather
than deeply sinking into self-knowledge as I would wish for them.
So,
let me just say what I know: It’s not the brain tumor, fear of surgery,
medication problems. It’s the fall out. One thing that is part of the fall out
is the desire/need dichotomy. In a story the hero needs to recognize and
accept, or change something about herself in order to have her desire(s). Well,
I just want this whole thing to be behind me, and so I have been avoiding “need”
like the plague. What? I really don’t want to accept that I need anything
except for this thing to be over and done. Har.
That’s
not how “need” works. A funny thing happens when one recognizes a level of
need in her life; the desire narrows in focus. I recognized several parts of
need that I’ve been avoiding in the last two months. One is that I need some
assistance, even if it is as simple as asking my god-daughter to pick up my
kids from school and deliver them to me after she’s finished classes at the
local university (thank you Madeleine King!). I have to accept that there are
some things that I cannot do for myself or my family right now. Then also I
realized that I need to rest more than I am accustomed to resting. Somehow
accepting the need to rest, I am allowing myself to feel my exhaustion and slow
down my ambitions. I’m not relaxed yet, but I’ve reached the point in the
journey when I can’t actually argue that I must finish anything or produce
anything except the bare minimum. I understand that all I need to do is accept
today including how I feel, where my energy is, and where my real commitments
are going to land. I’ve been incredibly supported by one of my favorite author’s,
Oriah Mountain Dreamer, and the words of her first book “The Invitation,” that
remind me that accepting necessary changes does not mean giving up.
The
very general desire of wanting this to be over has become more refined. The
aperture of my want has settled today on wanting to understand why accepting
help is so hard for me, and wanting to maintain the independence I have left by
minimizing how much I depend on others. I want to recognize that the reason I
cry now on a daily basis has very little to do with an anomaly that has
invaded my brain, but because the parts of me that I most value – the take care
of business, stiff upper lip gal, has no way to maintain. I have to set aside
some of my joking and sarcasm to be kind to myself and that is such a
challenge. Sucking it up, rather than
self-acceptance, is not working.
I
admit that my resistance is wearing down through shear necessity, and wouldn’t
it be so much easier if I could just put it away in a drawer until a sunnier
day? It would, but it forces me to confront the fact that I feel I am a
valuable person because I take care of things, of people. I feel worthy of love
or admiration because I give or instruct. Now I find that I simply don’t have
that much to give because I’m sleeping half the day away, because I can’t get
anywhere on my own time, because getting anywhere means that someone else has
to be the giver, because I don’t know where I’m headed. Argh! I do not want to
be pathetic, and I’m frustrated by my self-concept. I completely understand why the elders who
lose their mobility and abilities are so damned ornery or depressed. I really
get it now, and I had no idea before. My grandmother's favorite saying in her last years was, "Getting old is not for sissies."
The
last thing in the world I want to become is a pet, taken care of, directed by
other’s abilities to meet my needs and to feel vulnerable to delays and
constraints of scheduling and other obligations. I want to be fully
independent, but I understand that this is foolishness because none of us is
fully independent without paying the price of isolation. Therefore, my desire’s
narrowed aperture has framed something poignantly important: I want to know
that I am valuable and worthy of love even if I need…need anything at all…I
want to know that needing others in my life is good and as the song goes, “lucky,”
and I want to know that I won’t fall apart, and the world and all it offers won’t
fall apart if I take a break.
People who need people are the luckiest people in the world? I want to know that.
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